‘It would be much easier if we were just quiet and disappeared’: Parents silenced in the experience of caring for children with rare diseases

Currie, G., & Szabo, J. (2019). ‘It would be much easier if we were just quiet and disappeared’: Parents silenced in the experience of caring for children with rare diseases. Health Expectations, 22(6), 1251-1259. doi:10.1111/hex.12958
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