Background: Parent experiences of caring for children with neurodevelopmental disease have been silenced and constrained by social, political and health influences. There is a need to co‐construct new meanings and interpretations of parenting a child with complex disabilities by having an increased understanding of the struggles and barriers for parents. Methods: A hermeneutic phenomenology approach was applied in this inquiry. Fifteen parents of children with rare neurodevelopmental diseases participated in semi‐structured interviews. Results: Parents experienced silencing or being silenced within interactions with health‐care and social care systems and providers. Interpretive thematic...
Dwayne Sheehan; Nadine Van Wyk; Emily Johnson; Aimee Blanch
Date issued
2016
Description
The recreation sector is perfectly suited to specifically address issues surrounding the desire to be physically active. This is because of recreation's connection to the community, the broad spectrum of its consumers and its ability to address the positive health outcomes of an active lifestyle as it relates to the physical, social, emotional and cognitive domains of wellbeing. To do so appropriately, a guiding framework is necessary; however, one does not currently exist for the recreation sector. As such, we are creating a multi-layered functional physical literacy (FPL) framework to suit the needs of recreation programmers, instructors and parents, to ensure the delivery of high...